Tag Archives: rhabdomyosarcoma

Founder of RhabdomyosarcomaInfo.com Shares Her Dad’s Story

Founder of RhabdomyosarcomaInfo.com, Kimberly Edwards, shares with you her story about why she started this charity for Rhabdomyosarcoma because of the experience and loss of her father to this rare cancer. Kimberly wishes every father out there a Very Happy … Continue reading

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Rhabdomyosarcoma Journals: Inspiration and Encouragement, Where Do I Find Thee? Part #2: Inspiration

This is a continuation from my Rhabdomyosarcoma Journal Entry Part #1: Coping. A Need for Inspiration: On my first visit to the oncologist’s office, there was a tall gentleman there talking with his wife. He introduced himself as “Larry” and … Continue reading

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Rhabdomyosarcoma Journals: Inspiration and Encouragement, Where Do I Find Thee? Part #1: Coping

The combination of graduating High School and being diagnosed with cancer was like a double-whammy to my social life. Not that I had an extensive one but I went from being very busy every day after school to nothing within … Continue reading

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Rhabdomyosarcoma Journals: I Have What? Embryonal Rhabdomyosaroma

Okay, before I start into this next article, I need to explain the long pause between the writing of  my Rhabdomyosarcoma Journals… …This February (2011) was a roller coaster ride.  It started with an unexpected hospitalization & horrible ice dams … Continue reading

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Rhabdomyosarcoma Journal: How Did I Get Here?

To me, these medications are a fact of life now. I am an Embryonal Rhabdomyosarcoma Survivor of 22 years which by the way I count from when I was declared free of the disease in July 1988. Continue reading

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Clinically Indistinguishable Rhabdomyosarcomas

Information about rhabdomyosarcoma can be confusing at best. Here is some information that might help you that is very clinical in nature, but we have tried to summarize the main points and give you the meat and potatoes of the … Continue reading

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How MicroRNA-206 Expression Levels Correlate with Clinical Behaviour of Rhabdomyosarcomas

Researchers are looking to find better ways of diagnosing and treating Rhabdomyosarcoma. The treatments are pretty nasty and the long term side effects are not good either. So, we look at the genetics and find things that might predict how … Continue reading

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4 1/2 Months to Live? I Beg to Differ

Dad had his follow up appointment after a small biopsy of a marble-sized lump was taken from his triceps muscle on the back of his arm… “Mr. Turner, you have a rare cancer and you have 4 1/2 months to … Continue reading

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“Red is for Rhabdomyosarcoma” Movement

“K, Turn Around” Jewelry by Kimberly Edwards is the creator & proud sponsor of the: “Red is for Rhabdomyosarcoma” Movement via RhabdomyosarcomaInfo.com Part of the proceeds of everything sold on “K Turn Around” Jewelry’s site that is red goes towards … Continue reading

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What is Rhabdomyosarcoma?

Let’s face it…Many of you have NEVER heard of rhabdomyosarcoma before. Correct? I know it! Nor had we ever heard of it before my father was diagnosed with a marble-sized tumor in his triceps muscle. The doctors told him he … Continue reading

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