Tag Archives: rare cancer

Founder of RhabdomyosarcomaInfo.com Shares Her Dad’s Story

Founder of RhabdomyosarcomaInfo.com, Kimberly Edwards, shares with you her story about why she started this charity for Rhabdomyosarcoma because of the experience and loss of her father to this rare cancer. Kimberly wishes every father out there a Very Happy … Continue reading

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Rhabdomyosarcoma Journal: How Did I Get Here?

To me, these medications are a fact of life now. I am an Embryonal Rhabdomyosarcoma Survivor of 22 years which by the way I count from when I was declared free of the disease in July 1988. Continue reading

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Clinically Indistinguishable Rhabdomyosarcomas

Information about rhabdomyosarcoma can be confusing at best. Here is some information that might help you that is very clinical in nature, but we have tried to summarize the main points and give you the meat and potatoes of the … Continue reading

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How MicroRNA-206 Expression Levels Correlate with Clinical Behaviour of Rhabdomyosarcomas

Researchers are looking to find better ways of diagnosing and treating Rhabdomyosarcoma. The treatments are pretty nasty and the long term side effects are not good either. So, we look at the genetics and find things that might predict how … Continue reading

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4 1/2 Months to Live? I Beg to Differ

Dad had his follow up appointment after a small biopsy of a marble-sized lump was taken from his triceps muscle on the back of his arm… “Mr. Turner, you have a rare cancer and you have 4 1/2 months to … Continue reading

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What is Rhabdomyosarcoma?

Let’s face it…Many of you have NEVER heard of rhabdomyosarcoma before. Correct? I know it! Nor had we ever heard of it before my father was diagnosed with a marble-sized tumor in his triceps muscle. The doctors told him he … Continue reading

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